Saturday, July 18, 2015

Friday, July 17, 2015

July 17, 215

Hi All, At mom's this weekend. Looking forward to seeing everyone at my microboard meeting tomorrow.


Tuesday, June 23, 2015

URGENT - we need your help - DO NOT IGNORE

Please read the below letter Mary Ann received from Individual Advocacy Group - Sean's support is at risk.  The state of Illinois has not passed a budget  for providers to continue to provide services past June 30, 2015.

June 19, 2015

Dear Ms. Braasch,

We are writing you to seek your immediate help on a matter that has reached a level of crisis for IAG and the individuals it serves. The State has not passed a budget for the next fiscal year beginning July 1.  No new contracts have been issued by the State that authorizes IAG and other providers to continue to provide services and get paid for services provided after June 30. 2015, Even worse. no information is forthcoming as  to when a new budget will be passed.

PLEASE DO NOT IGNORE THE SERIOUSNESS OF THIS SITUATION !! !!!!!!! !!!
Please take the following action now!!
  1. Contact the Governor and your legislators and express youroutrage.  Please do not allow them to hurt your loved ones!!
  2. Please share your concerns with your family, friends and business associates.  Ask them to express their outrage to the Governor and elected legislators about what is happening to the people with disabilities who you love and care for.
  3. Utilize all resources available to you to get out the message about what is happening in Illinois.  We should not bepunished for the mess in Springfield.
IAG can only borrow so much money to keep going.  Please help now.

Thank you,

Dr. Charlene Bennett

Dr. David Brooks

Individual Advocacy Group
I289 Windhom Porkwoy
Romeoville, lL 60446
T: (ó30) 759-0201
F: (ó30) 759-1005

Saturday, May 16, 2015

2015 Walk Now for Autism Seaks

Great Day for the 2015 Walk Now for Autism Speaks!  Had a little rain but not enough to stop us from walking.

On our way to Soldier Field!!!

Mom and I

Barb  and I

At Soldier Field waiting for the walk to start.

Smile Dad your on camera.



Can we go there?

Don't worry Sean 
I'm not in the picture!
 

Let's go already!!!










Are we done yet?




Come on I see the finish line. 
Lets finish this.



Now do we get sliders!!!



THANKS to all that helped me surpass my goal. 

I raised $1061.00 for Autism Speaks and my team raised over $1,200.00. 

WAY TO GO TEAM!!!! 



Friday, May 15, 2015

Getting psyched for the Walk for Autism tomorrow at Soldier's Field.

Thanks to all that supported the team

Tuesday, April 14, 2015

New address for Sean's Blog

New address is http://Blog.Seanslife.org please take a moment to update your bookmark. Also follow us on Twitter @SeansLifeOrg

Saturday, April 11, 2015

Watch "On The Brink" April 12th @ 6Central

NBC’S DATELINE INVESTIGATES AUTISM’S ‘AGING OUT’ CRISIS IN “ON THE BRINK”

Kate Snow Shares Powerful Stories Of Young Adults Living With Autism And Their Families’ Desperate Search for Specialized Support
Dateline’s “On the Brink” Airs Sunday, April 12 at 7pm/6c
NEW YORK – April 9, 2015 – On Sunday, April 12 at 7pm/6c, NBC’s Dateline will air “On the Brink,” a powerful new report, three years in the making, that puts a spotlight on autism’s ‘aging out’ crisis. Over the next ten years, an estimated half a million young people with autism will turn 21 and 'age out' -- losing their eligibility for help through the education system. The stability and structure they have had nearly their whole lives will end, and there’s no equivalent support system to take over. “On the Brink” takes an unprecedented look at the lives of young adults with autism and the extraordinary measures parents take to provide their children with specialized services and a better future.
Over a three-year period, Dateline chronicles the raw and emotional journeys of two New York-based young adults with autism and their families, as they transition from graduation to adulthood and make a leap towards an uncertain future. NBC News National Correspondent Kate Snow interviews two mothers who devote their lives to caring for their sons and helping them find a voice. Snow shares their heartbreaking stories and the tremendous challenges of navigating a broken system of programs that will allow their sons to progress in life. “On the Brink” documents both families’ ongoing fight to help their children and revolutionize the way autism is perceived in the U.S.
“We spent countless hours with these two families for over three years and it truly was an eye-opening experience,” said Snow. “It’s one thing to know that services end for people when they turn 21, and it’s another to see it play out. We are grateful that both families allowed us into their private lives, so we are able to share their compelling stories and shine a much-needed spotlight on this important issue.”
Snow also speaks about concerns surrounding the ‘aging out’ process with Sharon Lewis, Senior Advisor on Disability Policy to the U.S. Secretary of Health and Human Services, and Linda Walder, Executive Director of the Daniel Jordan Fiddle Foundation, a non-profit organization devoted to studying the issues facing adults with autism.
Watch a preview of “On the Brink” here: http://www.nbcnews.com/dateline/preview-brink-n338706